27th - Birds, Pigs & Me

Let me start by saying how wonderful you all are.  I am so glad Stuart has so many friends!

Thank you to Susan Bell, Courtney Lyons and Cheryl Johnson for watching our children over the last few days. 

Thank you to the Cohns, Freemans, Haynes, Hetzels, Kerrins, Rullers and my Mom for providing copious amounts of wonderful food.  Everyone has helped me put a few pounds back on, although they seem to be in the wrong places.  I asked specifically for biceps, not love handles. 

A special thank you to Brian and Sarah Thompson for not only bringing us food, but introducing us to the seductive world of slow cooker chocolate cake.  Only in the South people...only in the South.

The last few days have all been very good physically.  I would rate them each a 7 or 8 out of 10.  I continue to take extra Prilosec OTC for stomach pain / heartburn, which continues to be my chief compliant.  Other than that (and the dwindling cancer), I am in "ship shape".  Tomorrow (Thursday) is my second treatment and believe it or not I am looking forward to it.  I think it is the simple fact that my parents raised me to equate pain with gain.

There is one more special thank you that I have to give here and it lends itself to my story.  My wonderful teammates at Bank of America (too many to list here) chipped in and bought me a very "pimped out" iPad, pre-loaded with their favorites Apps, Books, TV Shows, Movies, etc.  My favorite App by far is "Angry Birds", where you become addicted to flinging birds with a slingshot at the pigs who have stolen their eggs (which has made them...wait for it...angry!).  In the last few days, this game has become my metaphor of choice.  Follow me now...the birds are the chemo, the pigs are the cancer and tell me that the house below doesn't look like my chest...

Wish me luck tomorrow...bring on the birds!!!


You can see the white bird on the right of the picture...working hard to kill one of the cancerous pigs...

20th - Utterly Unimpressed

Let me start by saying thank you to Sparky for sending me a new copy of Lance Armstrong's book "It's Not About the Bike: My Journey Back to Life".  I should also say thank you to Bill, Cathy, Gray and Jamie for the great gifts, in particular the 6-month subscription to Netflix.  How did Blockbuster not see Netflix coming?  Mismanagement for the ages...

The visit with Dr. Frenette today was a good one.  As I mentioned yesterday, we had a long list for him, but he was up to the task.  Most of the symptoms I had did not phase him, in fact, Stuart and I both left reassured by how utterly unimpressed he seems with my cancer.  When I expect my stomach pain to be an exploding organ, he tells me not to be afraid of a little more Prilosec OTC.  When I think losing weight this early in chemo means I am done for, he reassures me "it's the American way to put the weight back on after treatment".  He is the perfect antidote for my obsessive compulsive disorder (OCD).  Speaking of my OCD, the word must have already spread throughout Dr. Frenette's office.  As one of nurses was reviewing the results of my blood work with me, she asked me twice if I wanted a copy to take home.  I declined the offer and headed home today feeling positive about both science and my faith.

19th - Conditioner Seems Silly

Happy Birthday today to my Dad, Dan Sr.  I love you.

Sorry for missing a few days of posts.  I attribute it to extreme melancholy with my situation.  That is in the past now and I am back to the expected level of positive mojo.

Stuart and I rated each of the last few days as they went by.  We did this to set up some expectation of what "normal" might be, but it will also give you some insight into what has been going on.  Sorry in advance to the believers in the 1-5 or 1-7 Likert Scale...we went with the tried and true 1-10 Cancer Sucks Scale (with 1 being the worst feeling in the world and 10 being the best).  Here is how we catalogued the days:

Thursday (Chemo Day): Can't recall...passed out
Friday (Day After): 7
Saturday: 4 (I actually feel asleep in the middle of the Hokie's rout of Wake Forest)
Sunday: 6
Monday: 7
Today (Tuesday): 8

All-in-all, I think this is pretty decent, assuming I feel good for the next 8 days prior to my next treatment and the rhythm is the same for the next 6 months.  Incidentally, I have also decided that I am going to kick this thing in 6 months rather than 8 months (you may recall the 6-8 month range the oncologist gave me for chemo).

Other than the Hokie victory, which moved us back into the the Top 25 in the polls, the highlight of the last few days has been talking with my old college roommate, Steve Sparks (a.k.a. Sparky).  Sparky always made me laugh and has not lost his touch.  We talked for almost an hour, mostly about his experience with Hodgkin's, but there was some inappropriate humor mixed in for good measure.  I have not laughed like that in a while and it was much needed.  Thanks Sparky.

Tomorrow I have an appointment with Dr. Frenette in the afternoon.  His goal is to check blood work; my goal will be to talk about mouth pain, bone aches, heartburn, flu shots, port pain, CD68+ macrophages and fear of children and public spaces.  It should be fun for him.

I will leave you with this.  It sure did seem silly putting conditioner in my hair in the shower today.

15th - The New Normal

Many of you have heard the phrase "the new normal".  It has been overused many times in the media over the past few years and I heard it a lot lately related to my condition.  The theory is that I will find a rhythm or pace to my life during this treatment.  As today is only "day 2" (common nomenclature for the first day after chemo), I will not pretend that I am anywhere close to the new normal.  Stuart will be glad to hear it after witnessing my day.

So how did I feel?  Generally pretty good.  A few common side effects not worth mentioning, although I will give special recognition to my burning feet...who knew?  Good thing I bought the lotion.

I did work for a couple hours and took a walk around the neighborhood for about an hour.  Other than those three, the rest of the hours in my day were spent on the Internet trying to get my head around what I read in my pathology report yesterday.  I will no doubt get past it and move on.

One of my college roommates, Steve Sparks, posted a comment to yesterday's entry.  He was diagnosed with Hodgkin's at age 28, so I look forward to his wisdom and experience as I go through this.

Tomorrow, my Hokies have a slim chance of beating Wake Forest and moving the team to 5-2 on the year...I will be tuned into ESPNU tomorrow for the 3:30 kickoff.

14th - Today's Flight to London

Thanks to everyone for the good mojo today.  I got through my first chemo session thanks to you.

In the end, it was the same as the routine flight from Charlotte to London.  Six plus hours long, the other people around you really don't look too healthy, the movie selection is terrible and the food makes you sick to your stomach.  For the frequent flyers in the group, I really wish chemo could be like a nice flight on Singapore Airlines.  Alas, it is too similar to US Airways.

In all seriousness, today's nurse Eileen was fantastic and she got me through with flying colors.  She is the mother of three boys and is from NY state.  Although my Mom is from NJ, they could have been sisters in spirit.  She made it much easier to bear.

Stuart stayed with me most of the time...I nodded off for a while in the beginning after a healthy dose of Benadryl as part of the "pre-chemo regime" and even watched a bit of a movie.  Today's film was Chloe, a racy, rated-R number that was long on nude scenes featuring Amanda Seyfriend, but woefully short on plot.  At least it didn't make me throw-up.

Speaking of nudity, I know I promised a picture of the port, but I think it's best to wait a few days...things are not where they are supposed to be at the moment.

One piece of annoying news today.  I read further into my pathology report and found that my count of CD68+ cells is very high (>25% of the background/benign cells are these macrophage cells).  A recent study about Hodgkin's Lymphoma published in the New England Journal of Medicine linked this "molecular marker" to a poorer prognosis for primary treatment as well as secondary treatment in case of a relapse.

So, all in all, today was a good day.  The chemo went great, but my pathology report is back on the front-burner of my mind.

13th - Under the Tent, Dreaming

Special thanks today to my brother Doug (middle brother of 3 boys) for getting up at the crack of dawn to take me to the hospital.  This is becoming a bad habit, as Doug also drove me to my first knee surgery a few years ago.  I hope I never repay this particular type of favor to you Doug.

Next, let me apologize to CMC-University, which in a moment of anger yesterday I referred to as a "B-level" facility.  Everyone was great there this morning and I successfully had my port placed.

This was another surgery performed under mild anesthesia (a.k.a. "Twilight")...so although I do not recall everything, I feel like I was very engaged...which you know the doctors and nurses loved.  As part of the preparation for the surgery, a sheet was taped to the base of my neck and then used to create a "tent" where a nurse could sit beside me and neither of us would see the real action going on.  This nurse, Charlotte, and I talked about music, work, my upcoming chemo and many other things as I prodded her for additional narcotics.  I was done in about 75 minutes, then spent another hour or so in recovery until I was discharged.

The port is under the large piece of gauze.  The smaller piece of gauze is an incision they made to help guide the catheter into a vein headed to my heart.

You can see the "port" below the scar (this photo was taken in March after a few months of healing).  It has several "bumps" to guide needles into it.  You can also see the catheter running up and over the clavicle, then into a large vein that then runs to the heart.

Chemo starts tomorrow at 10 AM at Dr. Frenette's office in Ballantyne.  I am scared, but find confidence in the fact that I have chosen the right doctor and that all of you are thinking of me and praying for me.

Bring on the Red Devil & Friends (sounds like a bad children's TV show)!

12th - A Problem w/ Mr. Deets

Special thanks again today to Bridget Ruller for watching Cooper in the morning and taking him to school.

This morning was extremely disappointing.  After another night of "no food or drink after midnight", Stuart and I went to CMC-Mercy at 9:30 for my port placement.  I will say that Mercy has been nicely remodeled since we last visited in the 1990's.  Beyond that, I have nothing nice to say today.  As we were beginning to fill out paperwork with the registrar, an RN stuck her head in and said, "There is a problem with Mr. Deets".  Wait a second, I am Mr. Deets, can I participate in this conversation?  She went on to explain that some of the equipment used in the port placement had been down since the early morning.  A phone call would have been nice!

So, we proceeded upstairs, where a very uninspiring middle-aged nurse asked if I'd rather have a temporary "pick-line" installed instead.  What?  Is this a used car lot?  I did make a couple phone calls to see if we could pull a string to get things done, but without success.

The port placement will have to wait until tomorrow...at CMC-University...just so I get the full tour of the "B" level facilities.

Wow, that post was cathartic.


An artist's rendition of CMC-Mercy after ongoing renovations are complete.